Health Directory
About Us | Add Site | Help


Health Directory
Rare Disorders
Home > Diseases & Conditions > Rare Disorders
Aicardi Syndrome   Pemphigus  
Barth Syndrome   Phenylketonuria  
Cystinosis   Pierre Robin Syndrome  
Degos   Progeria  
Erythromelalgia   Rubinstein-Taybi Syndrome  
Melorheostosis   Wegeners Granulomatosis  
Moyamoya  
XLH Network
Patient support group for XLH, a genetic condition also known as X-Linked Hypophosphatemia, X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets.
http://www.xlhnetwork.org/
National Organization for Rare Disorders, Inc.
Information about NORD, its programs, special events and the variety of services offered.
http://www.rarediseases.org/
Cherubs
A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
http://www.cherubs-cdh.org
Contact a Family
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
http://www.cafamily.org.uk
Human Growth Foundation
Information about growth-related disorders through education, research, and advocacy. Member driven organization.
http://www.hgfound.org/
Lymphangiomatosis and Gorham's Vanishing Bone Disease
Provides general information and a personal account, including pictures and X-rays.
http://www.gorhams.dk
Tetrahydrobiopterin
Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
http://www.bh4.org

OnlyHealthy.com - Include a health web directory. You can find links to website relate to health, diseases and conditions, cancer, beauty, fitness, nursing, yoga, weight loss and more.
        Browse Categories
Health Directory | About Us | Submit Site | Link to Us | Contact Us
© 2007OnlyHealthy.com All rights reserved.
Information on this web site is provided for personal health, cancer, pregnancy and birth, long term care, medication, mental health, homeopathy, hypnotherapy, non-toxic living and useful information.